Updates

5/30/11
Sterling is doing great.  Our summer break just started, and that means it has almost been a year since we learned that she has a cavernous malformation.  Please support the
http://www.angiomaalliance.org/ in any way that you are able.  Thank you for your love, support , and thoughts.


Sterling was an AMAZING orphan in "Annie."




1/6/11
Sterling is doing great.  She rarely sees double, and looks wonderful.
We met with Dr. Leslie Morrison at UNM in December.  Most of the doctors with whom we have spoken do not see many patients with Sterling's condition.  Dr. Morrison, however, specializes in cavernomas.  She was able to answer our questions more thoroughly, and honestly, than any other doctor thus far.
Sterling also had another MRI in December.  The results were good.
I have found the following pamphlet helpful, for those of you who still have questions about the condition.
Sterling and her friend, Marin, on Halloween
11/19/10
I have not posted any updates, as there is not much news.  Sterling is doing well, and we are all looking forward to Thanksgiving break (and have much to be thankful for.)
We meet with a doctor in Dec.  I'm anxiousfor this, as I have many questions.  The neurosurgeon at Phoenix Childrens' told us that the liklihood of her angioma bleeding again was 1% per year.  In reading online, however, I've seen that it can be as high as 30% per year.  In one study, ALL of the participants had another bleed within two years- and all ended up having surgery.  If Sterling needs to have surgery, the risk of severe neurological damage is high. 
There is no way to predict if it will happen again, there is no way to prevent it, and there is no warning.  This is all difficult to deal with mentally.
Thank you for you happy, healing thoughts, and prayers.
Have a happy Thanksgiving.





10/16/2010
Sterling was seen by her eye doctor last week.  He described her progress as "amazing" and "fantastic."
She is doing great.  Neurological damage doesn't always heal, and is unpredictable.  We feel very blessed that hers is resolving so well.


10/8/10
Ling's neurological issues continue to heal.  She often sees single- as opposed to double!






playing at the river

9/19/10
Sterling continues to heal from the neurological damage done by the blood in her brain.  Though she still suffers from double vision, she can now "force" the two images into one- which is excellent progress.
As to the cavernous malformation, it will always be there.  There will always be the danger that it could bleed again.  It is located in her brain stem and is, therefore, inoperable. 
New Mexico has more incidences of cavernous malformations than any other state.  This is because it is a genetic disorder which is strongly linked to Hispanic families.  Because of this, UNM has a lot of experience with, and knowledge about this disorder.  We will be meeting with a Dr. there in December.
I cannot begin to describe the intensity of this experience.  I also cannot thank everyone enough for their thoughts, prayers, letters, and support.  Thank you.







Sterling and Asa at the Duck Races

9/11/10
Sterling Susannah Wecks does NOT have brain cancer!  We got the results of the PET scan, and I cannot begin to describe the relief I feel to know that she has a cavernous angioma.  A doctor at UCLA had told us that she had a low-grade glioma (brain cancer).  He was wrong.  Thank you to everyone for your thoughts and prayers.  Sterling is doing great and I will update when I have more information about our plan for managing her situation.
9/4/2010
Sterling is doing well, and loves second grade.  We have a PET scan scheduled in Phoenix next week.  The scan will tell us whether she has a tumor or a cavernous angioma (malformation).  Send all of those happy thoughts, good wishes, and prayers our way on Thursday, the 9th at 1:30.